868 Inhibit Clinical Trials Platform to Prevent and Eradicate Inhibitors: Feasibility Survey of Current Prophylaxis and Immune Tolerance Practices
AUTORES Margaret V. Ragni, MD, MPH1; Frederico Xavier, MD, MS2; Craig D. Seaman3; Suchitra Acharya, MD4; Catherine E. McGuinn, MD5; Eric J. Werner, MD6; Courtney Elizabeth Lawrence, MD, MS7; Allison P. Wheeler, MD8; Ulrike Reiss, MD9; Irmel Ayala, MD10; Erin Cockrell, DO11; Cristina Tarango, MD12; Amy Dunn13; Roshni Kulkarni, MD14; Sanjay P Ahuja, MD15; Meera B. Chitlur, MD16; Steven W. Pipe, MD17; Lynn M Malec, MD18; Vilmarie Rodriguez, MD19; Shelley Crary, MD, MS20; Deborah Brown, MD21; Rosa Diaz, MD22; Maria Velez, MD23; Cindy A. Leissinger, MD24; Shannon L Carpenter, MD25; Christine M. Knoll, MD26; Michael Wang, MD27; Guy Young, MD28; Courtney D ThornburgMD29 ; Joseph L Lasky III, MD30; Tiffany Lin Lucas, MD31; Nina Hwang, MD32; Deborah Vehec, MSN, RN33; Dana Ivanco34; Tamara L. Haller, BS35; Marnie Bertolet, PhD36; Maria M Brooks, PhD37
1University of Pittsburgh Medicine, Division Hematology/Oncology, Pittsburgh, PA; 2Children’s Hospital of Pittsburgh, University of Pittsburgh Medical Center and Hemophilia Center of Western PA,Pittsburgh, PA; 3University of Pittsburgh, Warrendale, PA; 4Pediatric Hematology, Oncology and Cellular Therapy, Cohen Children’s Medical Center of New York, New Hyde Park, NY; 5Weill Cornell Medical College, New York, NY; 6Children’s Hospital of The King’s Daughters, Norfolk, VA; 7Division of Pediatric Hematology / Transfusion Medicine, Johns Hopkins University School of Medicine, Baltimore, MD; 8Dept. of Pediatric Hem./Onc., Monroe Carell Jr. Children’s Hospital at Vanderbilt, Nashville, TN; 9Department of Surgery, St. Jude Children’s Rsch. Hosp., Memphis, TN; 10Pediatric Cancer and BloodDisorders Center, Johns Hopkins All Children’s Outpatient Care Center, St. Petersburg, FL; 11St. Joseph’s Children’s Hospital, Tampa, FL; 12Division of Hematology, Cancer and Blood Diseases Institute, Cincinnati Children ’s Hospital Medical Center, Cincinnati, OH; 13Nationwide Children’s Hospital, Columbus, OH; 14Michigan State University Center for Bleeding and Clotting Disorders, East Lansing, MI; 15University Hospitals Cleveland Medical Center, Rainbow Babies and Children’s Hospital, Cleveland, OH; 16Hemostasis and Thrombosis Center, Children’s Hospital of Michigan, Detroit, MI; 17Departments of Pediatrics and Pathology, University of Michigan, Ann Arbor, MI; 18Blood Research Institute, Versiti, Milwaukee, WI; 19Division of Pediatric Hematology, Mayo Clinic, Rochester, MN; 20University of Arkansas for Medical Sciences, Little Rock, AR; 21Department of Pediatrics- Hematology Division, University of Texas Health Science Center at Houston, Houston, TX; 22Texas Children’s Hospital, Houston, TX; 23Children’s Hospital New Orleans, Louisiana State University, New Orleans, LA; 24Tulane University, New Orleans, LA; 25Children’s Mercy Hospital, Kansas City, MO; 26Arizona Hemophilia and Thrombosis Center, Phoenix Children’s Hospital, Phoenix, AZ; 27Anschutz Medical Campus, University of Colorado, School of Medicine, Hemophilia and Thrombosis Center, Aurora, CO; 28University of Califormia Los Angeles, Children’s Hospital Los Angeles, Los Angeles, CA; 29Rady Children’s Hospital, San Diego, CA; 30University of Nevada, Cure 4 the Kids Foundation, Las Vegas, NV; 31University of California, San Francisco, San Francisco, CA; 32CHOC Children’s Hospital, Orange County, Center for Inherited Blood Disorders (CIBD), Orange, CA; 33Hemophilia Center of Western PA, Institute for Transfusion Medicine, Vitalant, Pittsburgh, PA; 34Institute for Transfusion Medicine, Hemophilia Center of Western PA, Pittsburgh, PA; 35Department of Epidemiology, Epidemiology Data Center, University of Pittsburgh, Pittsburgh, PA; 36Epidemiology Data Center, University of Pittsburgh, Pittsburgh, PA; 37Graduate School of Public Health, University of Pittsburgh, Pittsburgh, PA.